Last evening 2/7/20, we met with Michael’s oncology team, headed by Dr. Jacqueline Stone, at Memorial Sloan Kettering. After much discussion, Michael decided to cease treatment and focus on his mental/physical health going forward. My parents and I fully support and respect Michael's decision, because we know that he is not giving up…he proudly said “I’m still (expletive) here!”
So, what’s next? We will be speaking with MSK hospice care about starting to have a team come by my parents’ house (where Michael resides) and check in on him. As time passes, that care will get more focused and intensive. The goal is keep Michael comfortable, while also lessening the burden on my wonderful mother and father.
We have no specific timeline, but we were told that the next few weeks to few months may get challenging. Please also know that in Dr. Stone’s experience this path (hopefully) will be one without a lot of pain and discomfort for our boy.
Please know that my family truly appreciates you: we know that you all have your own lives and responsibilities, but your thoughts and prayers for us are truly appreciated. The number of supports (world-wide!) that my brother has is truly amazing. This isn’t over...he’s “still f'n here!"