Hello all. We are in somewhat of a new reality (I guess we can say that in many respects with the coronavirus, too, eh?)
Thankfully, Michael is still ("fuckin'") here, as he liked to say...he is a fighter. But unfortunately, the grand mal seizure on Saturday took a toll on him. He has been pretty much asleep the last few days and is not very lucid for the most part. While he does have some moments of lucidity, it's very difficult to understand what he is saying, when he does speak. But, he does acknowledge us with hand squeezes, pointing and some verbal stuff, even a few tears.
Yesterday, Dad, Mom and I gave our boy a sponge bath and a shave, to which Michael said "thank you." We even threw some Joe Whyte Old Spice on him, to which M then gave us "the look!" I will say, it is very humbling to watch this unfold. Never in a million years did I expect to have to do what we are doing for our Michael. But, I am also extremely grateful that we can do this for him. My family has the opportunity to be with our boy and keep him safe, clean and comfortable. And we are strong...
We have had wonderful support from CT Hospice, mainly in the form of some great nurses, Tammy, Mike S. and Pindon W. They have repeated that there is NO timeline and that this could be our reality for hours, days, even weeks. Largely because M is healthy and his vitals remain very strong. The nurses have been so kind and they continue to compliment us, saying that we are a tight family and we are doing everything right to keep Michael comfortable.
What a challenge. As I write this, Michael continues to cut some serious Z's, and that makes us grin...he must be continuing to dream about London, or Italy, or Hawaii.
Thank you for giving us some quiet time with our boy. Thank you for all your prayers, texts, emails and good vibes. Keep the Michael stories coming! They are great reads for us! On this St. Paddy's Day, have a pint (or a seltzer!) for us today....and think of our Michael and smile and be grateful for what you have.
2 comments:
God bless you all 🙏 and happy St Patty's Day 💚
With all our love from my family to yours
Donna 🍀
A story from Mike M (Thanks Mike!!!):
Funny story, during the NYC blackout michael and I hung out all night. We spent every dollar we had at the bar that night. He actually closed on a cute girl that night. The next morning, I woke up with no money and all the ATMs were shutdown (no power). So I grabbed my change jar full of quarters, dimes, nickels and pennies and rode my bike the 3 blocks to michael’s apartment. I rang his door buzzer (none of our cell phones had batteries) and told him to grab his bike because I heard there were working ATMs and open bars on the upper west side. He politely asked his lady friend to leave and we rode around the city for hours on our bikes. One of the most fun days ever in NYC. Tell him I was thinking about that today during this crazy shutdown of society as we know it.
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